Genetic Counseling for Li-Fraumeni Syndrome.

November 9, 2017 was the first Genetic Counseling Awareness Day!

Andi Last met up with Wendy Kohlmann, MS, CGC, a licensed genetic counselor at The University of Utah Huntsman Cancer Institute to explain the value of a genetic counselor after a diagnosis of Li-Fraumeni syndrome. Wendy discusses the importance of life long meetings with genetic counselors when you have LFS. Sometimes new information is available that could affect screening or treatment, sometimes what the patient can understand changes as they get older and different issues present as we live LFS. A Genetic Counselor is a vital part of your CARE COMMUNITY.

Finding Your LFS CARE CommunityOne of the first questions mutants ask after diagnosis is- where should I go to receive the best car…Feb 17 2014www.livinglfs.org

 

Find a genetic counselor though the National Society of Genetic Counselors at NSGC.org or FindAGeneticCounselor.com

 

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For more information, please read some of our previous blogs on Genetic Counseling.

Genetic Counseling in LFS.

LFS- A genetic counselor’s perspective.

We are very thankful to Wendy for taking the time to explain the importance of genetic counseling in LFS and for her passion and dedication to our rare families!

More segments of our interview with Wendy are coming very soon, from Learning Li-Fraumeni Syndrome: a brand new video and audio podcast presented by Living LFS – Li-Fraumeni Syndrome! Like and follow our page to receive the latest updates.

 

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