Working with LFS: When Your Brain Gets in the Way

by Fannie Lemay

 

I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love” is a strong word, but I still really enjoyed myself. I’m what you would call a power loner. In my personal life, I have few close friends and that’s how I like it. I’m an introvert; I’m not outgoing. But for some reason, it’s easier for me to connect with people when I’m at work. I’m a bit silly and it seems to bring people together. I work hard and I like taking care of my work family. A lot of my self-worth comes from work. I don’t doubt at work; I just do. Well, I did…

First Christmas party at Cossette in 2010 with my favourite proofreader spectacular Geneviève. She taught me basically all I know.

When I started working at Cossette as a translator a little less than 10 years ago, it was my dream job. When people asked me during my college years where I’d like to work once I was done, my answer would always be “in the advertisement”. Of course, back then, I had no idea what it really meant. Luckily for me, the advertising world seemed to fit my personality and my brain perfectly. I was fast and could take the pressure. I found a very patient mentor that taught me to be a decent enough translator to keep my job, and I became part of an amazing AMAZING team that helped me become a better version of myself. Two years later, I became the team’s coordinator, and that was the best gift I ever received.

My brain was perfect for this new job. Because you see, my brain doesn’t work quite right. I have hyperesthesia, which basically means that sensory information reaches my brain faster than the average, and the information is processed in a significantly shorter time. My senses are basically heightened. Having hyperesthesia has a lot of disadvantages. Some days, I can’t stand being touched even by my loved ones. It feels like my skin is burning. I can’t tune out any sounds, so I have to work with headphones or the A/C will drive me insane. If my son is noisy, sometimes I have to leave the room for a while so I don’t get too irritated. I’m very rigid with food brands and if someone removes their shoes, I can smell their feet even if they don’t stink. It just smells like clean feet. Sometimes having hyperesthesia is overwhelming, but most days, it’s a blessing.

My weird brain helped me a lot in my role as a coordinator. Since I had an exceptional memory, I could manage a lot of projects simultaneously without needing to take notes or setting reminders. I loved going the extra mile to make sure everything was running smoothly, and I tried to protect my team and the work we were doing with all my heart. Because you see, working in an ad agency is a totally bipolar experience. I’m not sure how to describe it… It’s just so hard and so easy at the same time. It’s great and horrible. I always say it’s not a real job, except, fuck, it is. And I love it. And it seems to

My brain post-surgery. My neurosurgeon described the cavity left by the removal of my tumour as gigantic.

like me too. Well, it did…

When my neurosurgeon showed me the MRI of my avocado sized tumour, I thought my life was never going to be the same. But, turns out, that’s not what happened at all. Three years later, my life is pretty much exactly the same. I, on the other hand, am not. I am in pain almost all the time. Most days, I can deal with it. Some days, I can’t. Even now, more than one year after my last treatment, I’m still exhausted pretty much all the time. The kind of exhaustion that makes your legs hurt. Some weeks, I can have three “good” days in a row and, if I’m lucky, I can pull a fourth one out of my ass, but then I pay for it and I’m stuck in bed for 24 hours. Because my body never lets me forget that I’m broken. That this shitty treatment broke me.

My brain is also damaged. You can’t really tell from the outside if you don’t know me (or maybe you can), but it is. People tell me it’s just part of getting older, like chemo and radiation had less impact than the passing of time. Like I somehow aged 10 years in 12 months. I guess they want to make me feel better or more normal. It’s not working. Not even a little. But they mean well, so it’s nice. But I have to take notes now. All day, every day, I take notes. So I don’t forget. I FORGET STUFF NOW. A LOT. Not a lot actually, but a lot more. If I get interrupted, I lose track of what I was doing sometimes. When it happens, it hurts me, deeply. I was always able to rely on my brain, but not anymore.

All of this made my return to work very difficult and emotional. I’m not the same Fannie that left Cossette two years ago. I can still work and my new team seems to think I’m doing well. They are awesome and understanding. They are insane, and human and lovely. They laugh for real and eat cookies in the middle of the week. They are a little haven in this crazy place that is Cossette. I like them. But every time I forget something or miss something I wouldn’t have missed before my treatment, it hurts me. A lot. When I have to go home at 3 pm. because I’m too exhausted to do a good enough job until 5 pm, it hurts me. When I can’t be warm with my coworkers because the damn voice in my head screaming CANCER is just too loud that day, it hurts me.

This is Louise. She’s basically the soul of Cossette. She helped me feel confident that I was still worthy of keeping my job when I was at my lowest. I will be forever grateful to have had met her. I know returning to work is hard for any cancer patient. Some of my dearest friends had to go back to horrible working environment where they were judged and bullied. It’s not my case. I am very lucky to have landed in a company that takes care of me during this trying time, but it’s still hard. I guess I still have to make my way to the fifth stage of grief: Acceptance. When I started to live with Li-Fraumeni Syndrome, I had to let go of a lot of things. My freedom, my breasts, my innocence, having more kids, the ability to stay awake past 9 pm, my hair, but also, my career. I can’t seem to let go of what I thought my life would be. I have to redefine what I am as a wife, a mother, and an employee so I can be done with the constant guilt. But it’s hard you guys. It’s fucking hard.

If you are living with cancer and about to go back to work, I hope you can find a place that welcomes your new normal. Because let’s face it, you have other stuff to be worried about. Also, be kind to yourself. You are still worthy and your journey probably made you a better human in a lot of ways. That’s a very special gift. And if you work with someone that has a chronic disease, please be kind. Sometimes, you can’t tell from the outside how much they hurt inside…

Interesting fact: Cossette is the ad agency responsible for creating the amazing campaign for Sickkids. The Sickkids Foundation is a very important institution for the Li Fraumeni community. This is Sickkids VS Undeniable, one of the most powerful spots I have ever seen.


Sandra’s Story: Power from Knowledge and Hope

I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the size of a tangerine before it was found. I had to have my right leg amputated above the knee and secondaries removed from my right lung. It was difficult treatment and a new protocol that they hadn’t used in our hospital before. One of the chemo drugs had me hallucinating which was interesting and the ‘antidote’ had me wee all different colours which was also interesting in a different way. 😂.

 

That was in 1999-2000. Fast forward to 2009 and I’m a mum of three. My son got a lump on his temple which was diagnosed as Rhabdomyosarcoma. It was after this that we were referred to genetics and found out that me and Coby at least had Li Fraumeni Syndrome. Coby was 3 when he was diagnosed and he’s 13 now so he’s doing great. He’s not without issues, he has sensory processing disorder and suffers badly with anxiety but from a cancer viewpoint he’s done amazingly well.

 

We had not long known about the LFS when I found a lump and was diagnosed with my first breast cancer. My treatment started less than three weeks after Coby’s finished. It was during this time that we pushed for the girls to also be tested. My argument was if they don’t have it I can relax a little and if they do nothing changes. Both girls have it also. They are 12 and 9 now and neither have been poorly. All three of them have quarterly abdominal ultrasounds but not other surveillance although I do keep pushing for that also.

My other four children don’t have LFS which is obviously fantastic for them. None of them know about the LFS yet as they don’t need to deal with that shit just yet, I want them to be innocent from it for a while longer. I really don’t know how or when we will tell them or how they will cope with it. Hopefully they will take power from the knowledge and hope from the fact I’m still here after three cancers.