2019 Living LFS Family Camp

Living LFS is excited to be presenting our first annual Living LFS Family Camp!

WHEN: October 10-13, 2019

WHERE: Camp-Mak-A-Dream, Gold Creek, Montana

WHO: We welcome families who have at least one member diagnosed with LFS, including parents, legal guardians, children and siblings ages 6-17. (Children under the age of 6 may also be welcome on a case by case basis.)

COST: Thanks to Living LFS donors, this camp is free for LFS Families. Families only need arrange and pay for travel to and from camp. NOTE: Due to overwhelming demand, Living LFS requests a refundable $53 registration fee per family to complete your registration and hold your place at camp. (Note, this is $53 per family, NOT per attendee!) Fees will be refunded to you upon your arrival at camp.*

Click here to pay the $53 fee for your family.

  1. Choose “other” for the amount and enter $53
  2. Choose “2019 Family Camp – Registration Fee” as the designated fund
  3. Make the donation in honor of your family in the “Tribute Gift” section

* If you are unable to pay the fee, please email hello@livinglfs.org to confirm your registration
* If you are unable to attend camp after you’ve registered, email hello@livinglfs.org for a refund 

Donors, please contribute today. Donations will cover:

  • Camp Mak-A-Dream cabins, lodge, health and wellness centers, art studio and insurance costs
  • Meals and accommodations for all attendees and speakers
  • Shuttle service from airport to camp and back
  • Additional funds raised after all camp costs are covered will go towards travel scholarships

Visit livinglfs.org/donate and help us make the first annual Living LFS Family Camp a reality.

Check back for regular updates and additional information. Questions? Contact us!

Camp Mak-A-Dream

65 miles east of Missoula in Gold Creek, Montana is Camp Mak-A-Dream: a place where children, teens, young adults, adults and families affected by cancer can come to camp. This camp is a place where being hooked up to a central line or battling chronic fatigue doesn’t make us stand out. It’s a place where we can be part of an intimate community, one that would cheer us on toward victory and reserve judgment for our tears. A place where we can live with and live beyond cancer.

This medically supervised big sky western Montana experience begins with an hour-long shuttle ride from Missoula International Airport to our home for the weekend at Camp Mak-a-Dream.

At the first annual Living LFS Family Camp, we’ll be able to spend time with psychologists, genetic counselors and other medical professionals who can help us deal with our LFS diagnosis and talk with us about the difficult emotional and social issues that come with it:

  • Coping with diagnosis
  • Questions to ask doctors
  • Building trust with your doctors
  • Parenting with LFS
  • Parenting an LFS child or children
  • Living with LFS through adolescence
  • Communication challenges with partners (feelings, coping, intimacy challenges)
  • Survivor’s guilt and other guilt issues
  • Body image challenges
  • Talking to family, employers, medical professionals and others about LFS
  • Sharing genetic test results with family
  • Helping family members with feelings of hopelessness
  • Non-LFS partners’ experiences
  • How to share an LFS diagnosis with potential future partners

And, just as important, the 2019 Living LFS Family Camp will allow our community to spend time with each other. Many patients living with Li-Fraumeni Syndrome have never met anyone aside from family members who have the condition. At the Family Camp we’ll have the opportunity to bond with and support each other, learn, and enjoy the fun activities Camp Mak-A-Dream has to offer, despite the challenges of Li-Fraumeni Syndrome.

Camp Mak-A-Dream

More Details

Travel: Camp Mak-A-Dream is at 727 Camp Mak-A-Dream Road, Gold Creek, Montana, 59733. The closest Airport is in Missoula, Montana – Missoula International Airport (MSO). MSO has direct daily connections from major airports via United, Delta/Northwest, Horizon/Alaska Air, and Allegiant Airlines. Travel to Montana can be limited and/or expensive so we suggest campers make travel arrangements as soon as possible. Living LFS will provide limited shuttle service from the airport to camp and back.

Accommodations: The main lodge is nestled in the hills with beautiful modern cabins. Each cabin sleeps 12-18 in bunk beds, has a common area, and a handicap accessible bathroom. Like all of the facilities, the cabins are fully accessible and convenient for campers of all abilities.

Meals are provided in the Main Lodge where there are large round tables in a community atmosphere. Food is abundant and nutritious. Snacks are also available in the cabins. We will do our best to accommodate special dietary needs.

Activities will be dependent on weather, which can be unpredictable in October. There are opportunities for arts, crafts and yoga, and possibly archery, hiking, zip line, climbing wall and other sports. Families will have the opportunity for small group discussions and networking. During the evening, we plan special events for everyone designed to enhance community and friendship.

Medical Care and Staffing: Medical supervision is a part of living with LFS. Medical staff will be available at the on-site Health Center to facilitate health care as needed. Camp is a 20 minute drive to a community hospital and a one hour drive to a major medical center. For emergencies, there is a helicopter pad.

Help us make the First Annual Living LFS Family Camp at Camp-Mak-A-Dream a reality.

Visit livinglfs.org/donate to contribute today.