LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

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EDUCATE

Learn from our blog contributors. Personal stories, latest research, and mutant humor!

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COMMUNITY

It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community.

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SUPPORT GROUPS

Li-Fraumeni Syndrome Support Group

Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you.

Li-Fraumeni Syndrome Family & Friends

Click here to join a private Facebook support group for family members and friends to learn how to support their loved ones who are living with LFS.

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Thank you to our spring and summer birthday fundraisers! You raised over $3500 for living LFS! Your donations are a key part of supporting our LFS community and make activities like our 5 year anniversary giveaways and family camp possible. We appreciate you! ... See MoreSee Less

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Living LFS - Li-Fraumeni Syndrome

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Latest Blog Posts

by Fannie Lemay   I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love” is a strong word, but I still really enjoyed myself. I’m what you would call a power loner. In my personal life, I have few close friends and that’s how I like it. I’m an introvert; I’m not outgoing. But for some reason, it’s easier for me to connect with people when I’m at … read more

In 2002, I noticed a lump on the innerside of my upper left leg. The doctor thought of scar tissue caused by a mosquito bite, according to him nothing worrisome. I didn’t trust it and insisted on visiting a specialist. After some discussion he reluctantly issued a referral letter for the plastic surgeon. He clearly thought I was an instigator. The specialist cut out the lump and stitched me back up. After a week, I received a phone call from … read more