LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

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Learn from our blog contributors. Personal stories, latest research, and mutant humor!

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COMMUNITY

It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community.

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One more week to order! Shirts will ship in September- just in time for Childhood Cancer Awareness. Gold is the color for childhood cancers. www.bonfire.com/living-lfs-have-you-hugged-a-mutant/ ... See MoreSee Less

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Noelle has LFS and is a cancer survivor. For 3 years, she bikes to raise funds for LFS research through an organization called, LFS Association - Li-Fraumeni syndrome. Along with friends, Heather Brown Henstock and family- they're doing it again this year- helping fund research important for those living LFS. www.lfsassociation.org/noelles-lfs-fight-club/ ... See MoreSee Less

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Latest Blog Posts

Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she chooses to live despite living with LFS.  Thank you Fannie for sharing your memories of your mother and her strength with us.   My mom never knew she had Li-Fraumeni Syndrome. I was the first one to get genetic testing done. My mom died of breast cancer when I was 21 years old; she was … read more

  My name is Kathy Higgins. I have lost 4 family members to LFS.   KERRY Kerry was first diagnosed with cancer at the age of 12, an osteosarcoma in her thigh. She received chemo and had multiple operations on her leg. Kerry also had several small cancer issues over the years, skin spots on her face and back. She was not diagnosed with LFS at the time because the year was 1995, and LFS was just being discussed. She … read more