LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

Learn More

EDUCATE

Learn from our blog contributors. Personal stories, latest research, and mutant humor!

Explore Posts

COMMUNITY

It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community.

Find Support

Facebook Posts

Reminder! Our friends at the LFS Association - Li-Fraumeni syndrome are holding their 4th annual LFS Symposium April 25-29, just a little over 6 months away, in Toronto, Canada. Unless you're Canadian, you'll need to make sure your passport is up to date if you plan to attend! Depending on where you are in the world, applying for a passport, or renewing one, can take months - don't wait until the last minute! ... See MoreSee Less

View on Facebook

Latest Blog Posts

  D’Ana and her sister Courtney helped found Living LFS. They soon became our mutant sisters as we worked to bring those living LFS together. D’Ana lived fully and completely and shared her positive energy and laughter with anyone she ran across from childhood friends, to chemosabes(chemo friends) to her mutant family. The way D’Ana lived is very much the foundation of Living LFS and refected in our core values: Community, Compassion, Respect, Integrity and Levity. D’Ana had brilliant ideas … read more

Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she chooses to live despite living with LFS.  Thank you Fannie for sharing your memories of your mother and her strength with us.   My mom never knew she had Li-Fraumeni Syndrome. I was the first one to get genetic testing done. My mom died of breast cancer when I was 21 years old; she was … read more