Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.Learn More
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A woman with Li-Fraumeni Syndrome has almost a 100% chance of getting cancer in her lifetime. Although most of this risk is due to Breast Cancer, LFS women can develop cancer almost anywhere. When cancer metastasizes, spreading from the original tumor to other locations, it is no longer curable. For many women, with LFS and without, the threat of cancer recurrence is terrifying and very real. For these women, pink represents that threat. We Need More Than Pink by Katrina … read more
I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the size of a tangerine before it was found. I had to have my right leg amputated above the knee and secondaries removed from my right lung. It was difficult treatment and a new protocol that they hadn’t used in our hospital before. One of the chemo drugs had me hallucinating which was interesting and the … read more