Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.Learn More
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Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you.
Click here to join a private Facebook support group for family members and friends to learn how to support their loved ones who are living with LFS.
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One Year ago today, we lost a good friend. D’Ana Reed would poke in on the Facebook support group, but she preferred to be with people. She would pack Lola, her trusty blow up mattress in the back of her car and head out to support friends, family and mutants in need. Where Gabby landed was sure to be a good time, complete with karaoke, disco balls and dramatic readings of books, usually with an accent. When her metastatic breast … read more
Living with LFS has many challenges, stresses, and choices. We do not get to choose our DNA or IF we will get cancer. We can choose whether or not to screen or make lifestyle choices that affect our health. In a recent perspective article in the New England Journal of Medicine, Shekinah N.C. Elmore, M.D. shares her experience with LFS as a patient, medical student and doctor. Most importantly, Dr. Elmore discusses the devastation, the emotional aspects of learning to live … read more