Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.Learn More
Learn from our blog contributors. Personal stories, latest research, and mutant humor!Explore Posts
Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you.
Click here to join a private Facebook support group for family members and friends to learn how to support their loved ones who are living with LFS.
Latest Blog Posts
by Fannie Lemay I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love” is a strong word, but I still really enjoyed myself. I’m what you would call a power loner. In my personal life, I have few close friends and that’s how I like it. I’m an introvert; I’m not outgoing. But for some reason, it’s easier for me to connect with people when I’m at … read more
In 2002, I noticed a lump on the innerside of my upper left leg. The doctor thought of scar tissue caused by a mosquito bite, according to him nothing worrisome. I didn’t trust it and insisted on visiting a specialist. After some discussion he reluctantly issued a referral letter for the plastic surgeon. He clearly thought I was an instigator. The specialist cut out the lump and stitched me back up. After a week, I received a phone call from … read more