Facebook Posts
Do you wish you knew what to do for someone with cancer? Here's a great list of ideas.
Brian faced his first cancer at the age of 9, a rare rhabdomyosarcoma. This is what he learned living LFS, "With today’s technology, nobody is ever alone and even rare things, can find people to help you through. It’s great! For those fighting, keep up the good work! Best wishes to all mutants (and regular people too)" – Brian Rieshttp://www.livinglfs.org/brian-ries-no-matter-the-odds-keep-fighting/
Good information from the The George Pantziarka TP53 Trust from the U.K. 2017 LFS Conference. tp53.co.uk/lfs-uk-2017/
The presentations are now online from our successful LFS UK 2017 conference. All downloadable from:
Latest Blog Posts
Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she chooses to live despite living with LFS. Thank you Fannie for sharing your memories of your mother and her strength with us. My mom never knew she had Li-Fraumeni Syndrome. I was the first one to get genetic testing done. My mom died of breast cancer when I was 21 years old; she was … read more
My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age of 12, an osteosarcoma in her thigh. She received chemo and had multiple operations on her leg. Kerry also had several small cancer issues over the years, skin spots on her face and back. She was not diagnosed with LFS at the time because the year was 1995, and LFS was just being discussed. She … read more