LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

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It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community.

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Li-Fraumeni Syndrome Support Group

Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you.

Li-Fraumeni Syndrome Family & Friends

Click here to join a private Facebook support group for family members and friends to learn how to support their loved ones who are living with LFS.

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Latest Blog Posts

Living LFS was fortunate to attend the Li-Fraumeni Syndrome Association’s REACH 18 International Symposium in Toronto, Canada from April 25-29. Board members and support group members gathered at the Living LFS exhibition table, generously provided by the LFSA, between presentations by over 30 of the world’s foremost physicians and scientists in the fields of cancer genetics and LFS research. Many were excited to get to chat with Dr. Joseph Fraumeni himself and give him thanks for all he’s done for … read more

  Women with Li-Fraumeni Syndrome have close to 100% chance of developing cancer in their lifetime. About half of all these cancers develop before age 30 and about 50% of the risk is due to breast cancer. The risk of breast cancer by age 60 for women is 85%.  So, what’s a lady mutant to do? Understand YOUR Risk. Not everyone’s risk is the same. Meeting with a practitioner, ideally a Genetic Counselor familiar with LFS is a good way … read more