LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

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COMMUNITY

It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community.

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SUPPORT GROUPS

Li-Fraumeni Syndrome Support Group

Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you.

Li-Fraumeni Syndrome Family & Friends

Click here to join a private Facebook support group for family members and friends to learn how to support their loved ones who are living with LFS.

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Latest Blog Posts

  In April 2018, Living LFS awarded 14 travel scholarships to members of our support group to help them attend the LFSA 2018 REACH International LFS Symposium at SickKids Hospital in Toronto, Canada. These scholarships were provided by years of fundraising through T-shirt fundraisers and generous donations to our Friends of Living LFS program.   Linda and Doug Zercoe were Pathfinder donors, providing a $500 scholarship for one of our members.     Linda, a huge supporter of Living LFS, penned … read more

Living LFS was fortunate to attend the Li-Fraumeni Syndrome Association’s REACH 18 International Symposium in Toronto, Canada from April 25-29. Board members and support group members gathered at the Living LFS exhibition table, generously provided by the LFSA, between presentations by over 30 of the world’s foremost physicians and scientists in the fields of cancer genetics and LFS research. Many were excited to get to chat with Dr. Joseph Fraumeni himself and give him thanks for all he’s done for … read more