LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

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LFS in the news. Those of you who go to CHOP may remember reading about Court’s story and battle with osteosarcoma years ago- now she’s using her experiences to help others! ... See MoreSee Less

The Winter 2017/2018 issue of Cancer Today is available now: ctsm.aacr.org/5yQx30hyEk6

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So a big event is coming up that you really want to attend, maybe it’s in another country, and your bank account can’t quite handle getting there and staying there. Y’know, like The 4th International LFS Association Symposium, hosted by the Hospital For Sick Children and in partnership with the LiFE Consortium, happening in Toronto, Ontario, Canada, April 25-29, 2018. Yeah, that big event! You want to learn the latest about Li-Fraumeni Syndrome and to connect with other mutants, but your … read more

The holidays can be bittersweet when living LFS. We are grateful for each day, each memory, but we also experience an unfair helping of loss. On December 16, 2016, the Quist family surrounded 13 year old Josh as he earned his angel wings after enduring months of treatment, multiple surgeries and a clinical trial for a Glioblastoma brain tumor. Outside on a tree in their yard, hung several angel ornaments, gifts from friends to let Josh and the entire Quist … read more