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Our founding president's daughter, Lily...a two time survivor and awesome mini mutant, is a featured story for St. Baldrick's. Please read about how she is raising money for childhood cancer research.
LFS in the NEWS: It is wonderful to see a community come together to help support Ozzie and his family.
People with Li Fraumeni Syndrome are already at a high risk for multiple malignancies, but we are especially at risk for secondary malignancies due to treatment.
"Survivors of Li-Fraumeni syndrome–associated cancers demonstrated a stronger doxorubicin-breast cancer dose response than survivors of other cancers (P = .008). Cyclophosphamide showed a dose-dependent increased risk for sarcoma (P = .01)."
Latest Blog Posts
Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she chooses to live despite living with LFS. Thank you Fannie for sharing your memories of your mother and her strength with us. My mom never knew she had Li-Fraumeni Syndrome. I was the first one to get genetic testing done. My mom died of breast cancer when I was 21 years old; she was … read more
My name is Kathy Higgins. I have lost 4 family members to LFS. KERRY Kerry was first diagnosed with cancer at the age of 12, an osteosarcoma in her thigh. She received chemo and had multiple operations on her leg. Kerry also had several small cancer issues over the years, skin spots on her face and back. She was not diagnosed with LFS at the time because the year was 1995, and LFS was just being discussed. She … read more