LI-FRAUMENI SYNDROME

Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene.

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COMMUNITY

It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community.

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SUPPORT GROUPS

Li-Fraumeni Syndrome Support Group

Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you.

Li-Fraumeni Syndrome Family & Friends

Click here to join a private Facebook support group for family members and friends to learn how to support their loved ones who are living with LFS.

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4 days ago

Living LFS - Li-Fraumeni Syndrome

Living LFS Family Camp 2019. Thank you to all who made this event such a wonderful success! ... See MoreSee Less

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Family Camp 2019 was a success! The Lehman girls are jumping for joy that we are going to do another one! ... See MoreSee Less

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Latest Blog Posts

Authored By: Joni Allred After driving seven hours through a mostly empty land, we drove into the parking lot ready to be free of our vehicular prison. As we pulled up, we saw a man and woman bringing in their luggage. They both gave us a very friendly wave with big smiles on their faces. We had never met these people before and yet they greeted us as if we were old friends. Why would complete strangers be so happy … read more

by Fannie Lemay I hate social gatherings. All of them. Parties, family reunions, dinners with more than four guests… just I don’t like it. Even if I like every person present. So as I’m packing my luggage do go to Montana for 4 days with a bunch of strangers, I keep asking myself why in the entire hell am I going to this camp!? We’re going to spend all the days together. Eating together (THEY ARE GONNA SEE ME CHEW … read more